Boghuma Kabisen Titanji is a medical doctor and her research into HIV drug resistant viruses seeks to better understand the mechanisms of drug resistance and to identify new ways of targeting resistant viruses.
During the course of her research, Titanji met a woman named Celine who forever changed the way she thinks about the people who sign informed consent agreements to be research subjects. Ever since, Titanji has been a vocal advocate for ethical medical research, calling for researchers to find less exploitative ways to study diseases in developing countries.
In one of her talks delivered at TED information sharing sessions, she is more concerned about the following key factors that needs to be given more importance while conducting studies especially in the Developing countries.
1. Informed consent - The information contained in IC's which are provided to trial participants needs to be available efficiently in linguistically and acceptable formats.
2. Standard of care - Needs to be improved in case of developing countries.
3. Ethical Review - Effective system needs to be incorporated and its quite important especially in case of developing countries.
4. Public Accountability
5. The research which the pharmaceutical companies and funding agencies perform should be made available/accessible to clinical trial participants for future medical support.
To listen to her talk, please click on the following link.
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